Sorry, you need to enable JavaScript to visit this website.

Adult

Hemophilia B Endorsed

Information for Adults With Hemophilia B

B2B Book: Young Adults and Hemophilia B

You transition through many stages of life as an adult—going to college, finding a career, getting married, and starting a family. When you have a chronic condition like hemophilia B, handling these new situations and responsibilities can be challenging.

With some guidance, however, these challenges can be tackled and managed successfully. You can learn how to recognize issues and situations that may arise during this time of your life and find tips and solutions here to guide you.

PATIENT STORIES

Read more
Read firsthand, real-life stories from members of the hemophilia B community.

Featured Book

Young Adults and Hemophilia B
Get more information about dating, moving out, starting a career, and perhaps starting a family in this book written for young adults.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient