Sorry, you need to enable JavaScript to visit this website.

Book Downloads

Hemophilia B Endorsed

B2B Book Series

Check out the eight books in our B2B series, which cover a wide range of topics that speak to the hemophilia B community. Choose the eFlip format to read online and flip through like an actual book or the PDF format to download, print, and take anywhere.

Book Downloads

Hemophilia B: Paths to Empowerment
Learn how others impacted by hemophilia B define what it means to be empowered and how you may be able to apply this concept to your hemophilia B.
Hemophilia B: A Family Perspective
This book provides real-life examples and guidance for families with a member who has hemophilia B.
Navigating the Preteen Years
This book provides advice and support specifically about hemophilia B druing the preteen years.
Young Adults and Hemophilia B
Get more information about dating, moving out, starting a career, and perhaps starting a family in this book written for young adults.
Hemophilia B: Your Point of View
Read this book for advice that will help you with the conversation about hemophilia B with your friends, teachers, and possible romantic interests.
Learn From Experience A Guide for Mature Adults
Read this book to learn how to recognize certain situations that may arise for mature adults and for guidance along the way.
Many Faces of Hemophilia B: Challenges and Opportunities
Reading this book will give you an introduction to some of the challenges and opportunities that come with having hemophilia B.
Hemophilia B In Early Childhood
Raising a child is challenging, but raising a child with hemophilia B can be uniquely challenging. Download this book to help you prepare for what to expect.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient