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Hemophilia B In Early Childhood

Hemophilia B In Early Childhood

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
The fourth book in the B2B series, Hemophilia B in Early Childhood, offers tips from parents who have raised infants, toddlers, and preschoolers with hemophilia B and gives insight from medical professionals who treat children with hemophilia B. It provides insight to families with young children who may have questions about what it is like to be a family with hemophilia B.

Hemophilia B In Early Childhood

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
The fourth book in the B2B series, Hemophilia B in Early Childhood, offers tips from parents who have raised infants, toddlers, and preschoolers with hemophilia B and gives insight from medical professionals who treat children with hemophilia B. It provides insight to families with young children who may have questions about what it is like to be a family with hemophilia B.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient