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Hemophilia B: A Family Perspective

Hemophilia B: A Family Perspective

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
This book is the seventh in the B2B series. It is called Hemophilia B: A Family Perspective, and it focuses on issues families face when living with someone who has hemophilia B. Medical professionals, as well as families, offer their thoughts on how to live with hemophilia B. Sharing this book with families will help members build healthy communication skills for discussing hemophilia B.

Hemophilia B: A Family Perspective

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
This book is the seventh in the B2B series. It is called Hemophilia B: A Family Perspective, and it focuses on issues families face when living with someone who has hemophilia B. Medical professionals, as well as families, offer their thoughts on how to live with hemophilia B. Sharing this book with families will help members build healthy communication skills for discussing hemophilia B.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient