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Hemophilia B: Your Point of View

Hemophilia B: Your Point of View

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
This book, the fifth book in the B2B series, Hemophilia B: Your Point of View, has been developed to provide tips from your peers who have hemophilia B. It can help you deal with some of the challenges you may encounter during your adolescent or teenage years. It offers suggestions from medical professionals about building self-esteem, taking charge of your own medical care, and planning for your future. You may find it helpful to share this book with your parents and other members of your family, as it may offer a way for them to understand hemophilia B from your point of view.

Hemophilia B: Your Point of View

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
This book, the fifth book in the B2B series, Hemophilia B: Your Point of View, has been developed to provide tips from your peers who have hemophilia B. It can help you deal with some of the challenges you may encounter during your adolescent or teenage years. It offers suggestions from medical professionals about building self-esteem, taking charge of your own medical care, and planning for your future. You may find it helpful to share this book with your parents and other members of your family, as it may offer a way for them to understand hemophilia B from your point of view.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient