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Many Faces of Hemophilia B: Challenges and Opportunities

Many Faces of Hemophilia B: Challenges and Opportunities

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
In this sixth book in the B2B series, Many Faces of Hemophilia B: Challenges and Opportunities, you will find discussions about the clinical challenges and complications that affect the daily lives of people with hemophilia B. You’ll also find valuable guidance from medical professionals who are dedicated to helping families and individuals living with hemophilia B. Their educational insight may help you gain a deeper knowledge of the challenges often faced with hemophilia B and the opportunities that exist.

Many Faces of Hemophilia B: Challenges and Opportunities

B2B Book Series

Select one of the download options, and take the book with you wherever you go.
Book Details
In this sixth book in the B2B series, Many Faces of Hemophilia B: Challenges and Opportunities, you will find discussions about the clinical challenges and complications that affect the daily lives of people with hemophilia B. You’ll also find valuable guidance from medical professionals who are dedicated to helping families and individuals living with hemophilia B. Their educational insight may help you gain a deeper knowledge of the challenges often faced with hemophilia B and the opportunities that exist.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient