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Teen

Hemophilia B Endorsed

Information for Teens With Hemophilia B

B2B Book: Hemophilia B: Your Point of View

During your teenage years you can expect plenty of changes. Your relationship with your parents may change as you become more independent, and your peers and relationships may begin to take on a bigger role. With all this, it can be a challenging time in your life, and adding hemophilia B into the mix may provide even more challenges.

As you encounter challenges during this life stage, guidance and support are available. Look to medical professionals, comprehensive treatment centers, and other people with similar experiences for some tips on coping with hemophilia B. With these resources, you may learn how to live life with hemophilia B in the proper perspective.

PATIENT STORIES

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Read firsthand, real-life stories from members of the hemophilia B community.

Featured Book

Hemophilia B: Your Point of View
Read this book for advice that will help you with the conversation about hemophilia B with your friends, teachers, and possible romantic interests.
  • “I try to foster healthy self-esteem by trying new things with the confidence of a survivor and the wisdom of a mature bleeder. Chronic illness is a blessing when its management is just part of life.”
    Paul B.
    Patient
  • “I think it is so important to make the chronic illness a nondefining part of life. My daughter has hemophilia B, but that certainly isn’t the most important thing I want people to know about her. We’ve worked hard to make sure we keep hemophilia B in a place of balance in our lives.”
    Becky V.
    Caregiver
  • “I strongly encourage other caregivers to get involved. This gives you the tools and strength to better advocate for your care. It also provides that all-important support system.”
    Nina D.
    Caregiver
  • “I go to my hematologist with the direct intent of discussing my treatment plan and product; not empty minded, waiting for instruction.”
    Felix G.
    Patient
  • “Walking is particularly difficult, so I limp in private and swagger in public.”
    Paul B.
    Patient